Tuesday, May 1, 2012

Can't think of a good title.

written April 30
published May 1

I having been procrastinating in my updates for two reasons. First, I still feel like I am in Hell's version of groundhog's day, and second, the more I talk about my current cancerous status, the more I feel like I am living in the present, where as I would rather be living in the future (cancer free).

As many of you know I have chemotherapy every other Friday. On the weekends I don't have chemo, I like to do whatever I can to help me "escape from reality". (try and name the song I just quoted). Some of my recent escapes have been to Yosemite National Park (saw Half Dome), Minnesota (saw the Mall of America), Las Vegas (saw Flava Flav) and Phoenix (saw Family).

This last Friday, I had my 8th round of chemo. I have progressively gotten more and more sick each time I go. I am trying to do whatever I can to help with the horrible feelings I get when I arrive. For the last few rounds, once I check in to hospital, I go outside, sit on a bench and wait for my name to be called. I just sit on a bench by myself and try to enjoy the sun, the birds, the breeze, or anything that distracts me from the feeling of nausea.

An interesting side note is that I felt too sick to get out of the car once we arrived home, so I just reclined the seat and stayed in the car for about an hour. Once I thought I could get to my bed safely, I opened the door, stepped out and ended up on my knees throwing up in the planter. My neighbors probably think I am the biggest alcoholic. It was 4:30 in the afternoon.

One of the most difficult parts of the treatments are the terrible smells associated with the drugs, hospital, cleaning solutions.... I started writing this paragraph this morning, but just thinking about it made me sick, so I am giving it another try this evening. I have tried different candies, burying my head in a pillow, sleeve, different masks... but the smells still get to me. I AM UP FOR ANY SERIOUS or NON SERIOUS SUGGESTIONS.

Overall, I am still doing fine. For those of you who have not heard, I received the results from a mid treatment scan, and the cancer is retreating/ appears to have left. This is not an official "All Clear", but its definitely good news. I don't like the word remission, so retreat is what I say.

My hair is falling out, but not bald. For some reason, I have lost all the hair on my thighs. They are quite smooth. I am also losing a lot of armpit hair. I guess if I was going to choose areas that I don't mind losing hair those would be it. Other than the hair, and being out of shape, I am doing fine.

On a more serious note. I consider myself very blessed to have gone through what I have so far. I heard someone put life in perspective this way.
             -Its only when you are aware of death, that life screams at you with such intensity-
I feel like I have been given such a unique opportunity to look at life in a way that most people my age don't get. It reminds me of the book titled, "Don't sweat the small stuff, it's all small stuff." I am not professing to be any more wise or educated than anyone else, but I feel a change within me on my view of life.

I appreciate all the support in its many forms: prayers, texts, emails, phone calls, fasts, thought, etc.

This is the part where I insert photos... the photos we have from the last few treatments don't show off my baby angel-like glow. They will be funny to laugh at... down the road.

4 comments:

  1. I would just like to add this. . . Even when Wes is sick as a dog in bed, and I have to hand feed him strawberries and ice chips, he is still able to throw in some "that's what she said" jokes. I'm convinced he can make light of any situation, and it's nice to laugh in times like these.

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  2. The both of you are very inspiring. :) -Simone

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  3. Kristen, I am sure you are such a source of strength for Wes. You both will be blessed with a deeper love for each other and appreciation for life when this is over.
    Aunt Carol

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  4. I dont think I can be any help with the smells, but seriously, if there is anything I can help you out with, let me know. Oncology is not my specialty ( and I hated it in med school) but if need something translated out of doctor speak, I can help. Keep doing well. -coffman

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